RESIDENT: Mapping the Family Experience in Early Psychosis: Insights from a Narrative Study on Family Careers
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Presenting Author(s): Roxoliana TsisarCo-Author(s): Katherine Shettell, Kristen Zentner, Melanie Robles, Adam Abba-Aji
Date and time: 20 Mar 2026 from 14:20 to 14:35
Location: Saddleback & Glacier 
Learning Objectives
- Recognize how young adult recovery journey with serious mental illness shapes the family's parallel experience;
- Explore principles of collaborative communication and family engagement in integrated support services for supporting families; and
- Identify common gaps in care experienced by family caregivers and opportunities for support across the care trajectory.
Abstract
Background/Rationale: Family plays a critical role in the recovery of individuals with severe mental illness. Despite best practice documents and guidelines that recommend family inclusion, many families report struggling to navigate the complex system and being blocked from effectively supporting their loved ones. The current study traces common episodes in carer stories to deepen understanding and identify when system support was needed.
Methods: Semi-structured interviews (n = 8) were conducted with carers who supported a young adult with psychosis. Audio-recorded interviews were transcribed and coded using Labov's narrative approach. Common episodes in carer stories were arranged as a metanarrative. Themes contextualize each meta- episode.
Results: Meta-episodes generated from the data were 1) Factors shaping developmental trajectories 2) Blurry boundary between typical and atypical development, 3) Escalation of psychiatric symptoms, 4) Crisis event, 5) Repeated interactions with the healthcare system, 6) Hospitalization, and 7) Post-discharge Recovery.
Conclusions: Families experience a tumultuous and traumatic journey through the mental health system as they grieve changes to their family structure, support their loved one's recovery, and advocate for care. Carers emphasized their need for access to services during early stages of psychosis, responsive crisis supports, accessible family programming, and clease collaborative communication with clinicians. Action/Impact: This study raises consciousness about the carers' journey as they walk alongside a loved one with psychosis, calling on care teams to empathize with families and support them as essential partners in recovery.
Literature References
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- Baxter, E. A., & Diehl, S. (1998). Emotional stages: Consumers and family members recovering from the trauma of mental illness. Psychiatric Rehabilitation Journal, 21(4), 349-355. https://doi.org/10.1037/h0095289
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- Kreyenbuhl, J., Buchanan, R. W., Dickerson, F. B., & Dixon, L. B. (2010). The Schizophrenia Patient Outcomes Research Team (PORT): Updated Treatment Recommendations 2009. Schizophrenia Bulletin, 36(1), 94–103. https://doi.org/10.1093/schbul/sbp130
- Labov, W., & Waletzky, J. (1997). Narrative Analysis: Oral Versions of Personal Experience1. Journal of Narrative and Life History, 7(1-4), 3-38. https://doi.org/10.1075/jnlh.7.02nar
- MacCourt, P., Family Caregivers Advisory Committee, & Mental Health Commission of Canada. (2013). National Guidelines for a Comprehensive Service System to Support Family Caregivers of Adults with Mental Health Problems and Illnesses.
- Quah, S. (2014). Caring for persons with schizophrenia at home: examining the link between family caregivers' role distress and quality of life. Sociology of Health & Illness, 36(4), 596-612. https://doi.org/10.1111/1467-9566.12091
- Rachamim, L., Nacasch, N., & Sinay, I. (2022). Complicated Grief, Depression, Health and Attachment Style in First Degree Relatives of Individuals with a Chronic Psychotic Disorders. Community Mental Health Journal, 58(3), 526–535. https://doi.org/10.1007/s10597-021-00848-z
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